Better Tools for Multi-site Research

Ensuring that health care (and health research with diverse populations) is culturally and linguistically appropriate is anything but automatic. The Cross Cultural Health Program offers training, consultation, and resource guides that help health care providers and researchers meet the needs of diverse populations and address health disparities.   

From the Cross Cultural (CC) Health Care Program's Cultural Competency Training Program.  http://www.xculture.org/cctrainingprograms.php

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From the Examining Community-Institutional Partnerships for Prevention Research Group. The curriculum is intended as a tool for use by community-academic partnerships that are using or planning to use a Community-based Participatory Research (CBPR) approach to improving health. It can be used by partnerships that are just forming as well as existing partnerships. It is intended for use by health professions faculty and researchers, students and post-doctoral fellows, staff of community-based organizations, and staff of public health agencies at all skill levels.  

The Examining Community-Institutional Partnerships for Prevention Research Group. Developing and Sustaining Community-Based Participatory Research Partnerships: A Skill-Building Curriculum. 2006.   http://www.cbprcurriculum.info/

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Web site with many resource links allowing exploration of and training for cultural awareness in health care, including tools for teaching cultural competencies, patient information resources, topic-relevant professional associations and book titles, links to journals focused on cultural diversity and health care, and more.

From Dartmouth College Library. http://libguides.dartmouth.edu/content.php?pid=45470

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This comprehensive report outlines 58 recommendations that center around seven broad themes. These recommendations help define the involvement of communities in the development and implementation of phase III cancer clinical trials. The report details these recommendations with a full rationale, as well as an extensive appendix, with strategies and resources for implementation.  Click here to download.

Organized in a question-and-answer format, this excellent resource describes the conceptual framework for, and processes and steps involved in developing community-engaged research collaborations or partnerships with community- and practice-based clinicians. It includes resources to facilitate this work and address some of the barriers to collaboration. A shorter version of this guide is also available for download on UCSF's CTSI website.   Click here to download.

Courtesy of the University of California San Francisco (UCSF) Clinical and Translational Science Institute (CTSI) Community Engagement Program.  http://ctsi.ucsf.edu/files/CE_CC_Guide_for_Researchers.pdf

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Organized in a question-and-answer format, this excellent resource describes the conceptual framework for, and processes and steps involved in developing community-engaged research collaborations or partnerships with community-based organizations and agencies. It includes resources to facilitate this work and address some of the barriers to collaboration. A shorter version of this guide is also available for download on UCSF's CTSI website.   Click here to download.

Courtesy of the University of California San Francisco (UCSF) Clinical and Translational Science Institute (CTSI) Community Engagement Program.  http://ctsi.ucsf.edu/files/CE_CARE_Guide_for_Investigators.doc

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This article presents the design and conceptual foundations for a year-long community based participatory research (CBPR) education and training program in which community based organization (CBO) teams learn research design, discuss CBPR principles, design and implement a community health-related research project tailored to their program and community, conduct analysis, and initiate integration of the results into the organization and community. Click here to download.

From Progress in Community Health Partnerships: Research, Education, and Action published online at Project MUSE, Johns Hopkins University 
 http://muse.jhu.edu/journals/progress_in_community_health_partnerships_research_education_and_action/toc/cpr.2.2.html

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CTN Best Practices offers researchers tools to help select clinical sites for research. For example, a checklist outlining minimum requirements for facilities and dedicated/non-dedicated staff, space, equipment, and education and training required for a clinical study. Also included is a site survey for gathering information to provide a sponsor/ARO/CRO before site selection and a presentation for study coordinators entitled, What Makes a Top Ten Site: An ARO Perspective.  

From Clinical Trials Networks Best Practices (CTNBP) of Duke Clinical Research Institute (DCRI). Presented by the Duke Clinical Research Institute Statistics group and CTN Best Practices principal investigator, Robert A. Harrington, MD.  https://www.ctnbestpractices.org/sites/site-selection

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This manuscript describes survey findings relating to barriers to physician participation in cancer control trials among oncologists, oncology leaders, and health plan leaders. Predictors of participation, essential infrastructure and support needs, and other important factors are discussed.  Click here to download.

Somkin CP, Altschuler A, Ackerson L, Geiger AM, Greene SM, Mouchawar J, Holup J, Fehrenbacher L, Nelson A, Glass A, Polikoff J, Tishler S, Schmidt C, Field T, Wagner E. Organizational Barriers to Physician Participation in Cancer Clinical Trials. American Journal of Managed Care. 2005 11(7): 413 - 421.  http://www.ajmc.com/media/pdf/AJMC05julSomkin413to421.pdf

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